Together with patient advocates and leading ILC experts, we designed a survey in which with more than 1,700 (researchers, clinicians and patients) from 66 countries participated. Patients identified improvement of ILC screening/early detection, and development of better imaging tools as top research priorities. In contrast, both researchers and clinicians identified understanding of endocrine resistance and identifying novel drugs that can be tested in clinical trials as top research priority. Other research priorities included i) Dormancy, ii) ILC modeling, and ii) genomic predictors. Other noteworthy findings were that the majority of patients and advocates thought that their health care providers did not sufficiently explain the unique features of ILC, and that 85% of clinicians have never powered a clinical trial to allow subset analysis for histological subtypes, but the majority would consider it, and would participate in an ILC clinical trials consortium.
Important ILC Research: “International survey on invasive lobular breast cancer identifies priority research questions”
